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2019-05-13 - 7:49 p.m. I have 11 medical appts to make. My hobby of late is reading about dysautonomia Its exhausting having two teens with pretty bad POTS symptoms. It is befuddling and can be itself a bit depressing. I am feeling better today at action taken to do what I can for my one daughter. The school is going to work on arranging home-bound for her for the remainder of year. That alone I think gave her too more encouragement and she spent time this afternoon after she finally woke up working on school work. Came to the library to print out the required paperwork the assistant principal mailed to me. I recently changed password to my email and am sure I won't recall it. Left the cell phone home...so to reset not an option til I have that. So I am at the library, and will write just a bit and then try to get into my acct. If not successful will just print those papers tomorrow evening. I have til Friday to get them filled out by Drs and returned to school so it will be a busy couple of days. I have an idea for a new poem.It will come in time. Here is the paraphrase: "Remember those 80s stickers "baby on board"? (OK... now my comment here... Really? How did she reach the pedals? OK, so he was exaggerating a bit... or just misspoke but I can let that go, even if not possible....) "But then the next generation had these car seats and auto eject buttons for safety.." (OK I get it, the guy is Trying HARD to be FUNNY. Its a better show if he engages the audience with humor. It is his PERFORMANCE style. I think that is what first irritates me... that this pastor always seems to be performing. Even the affect when he seems seriously contemplative spiritual which comes after attempts to be funny just falls short of sincere to me.) So he continues then with: " So now this next generation comes, and we have these 'snowflakes' - these twenty somethings are filling the campuses with their mental health needs and they are taxing the system" What the FUCK ? I mean the guys credibility was already low and then he goes from low to ZERO. As in NO FACT based viewpoint "Each generation is influenced by the neuroticism of the one before, and it seems to keep getting worse" Great, so now you are telling us parents our kids with mental illness are so because of OUR neurotic fears. "The neurotic fears keep growing" I forget his main point after that as I was busy trying hard to just not be at all full of righteous anger but rather absolute compassionate pity for the man and invoking a sense of forgiveness. I TRIED to then pay attention to the positive kernels therein... something about ... OH yeah his take on the actual reading which was of the Shepard leading his sheep. I was however more in tune and paying attention to the mom above me whom happens to have a bi-polar daughter the same age as my oldest child. This daughter of hers who is tremendously talented, actually one year in class older than my child perhaps..now that I recall. She was always an incredible writer. It made me happy to see her husband who had been ushering or something, so standing elsewhere make his way back to hold her hand in solidarity and quiet support. His non verbal act of love and what I read as expression of "Just ignore this bullshit" was quite subtle , yet strong and absolutely beautiful and I focused on them as she shared with me that there are many symptoms and traits in him that are likely the genetic family shared challenged lived with and overcome... without diagnosis , and so I was struck by the marvelous strength of their love. But I heard the rest, the underwealming interpertation of the scripture.. He went on " It is only through the Shepard they are saved" And the congregation , not more than one or two a day younger than 30, found their comfort that morn. And I thought He missed the point. Sheep find their strength in numbers. And just like the small quiet voices we listen to; it is their collective joining with other quiet voices which give them resonance and strength such that they can not be ignored and have great effect. They then become powerful beyond measure. It is like an individual snowflake. If bonded with other, they can come together to create an avalanche. So there are the seeds for the idea of my next poem. Maybe they will remain an essay. But seriously, as long as I keep going to this church for what I each time expect to be a wonderful beautiful experience- ( I mean I figure my local Catholic homophobic priest is SO HORRIFIC this other local church can't be as bad so I occasionally stop in- and sometimes it is not a huge disappointment. I REALLY like a number of the attendees... that is the weird part! I get such support and encouragement from them! I go to another church regularly I truly love as the pastor there is fantastic. Its the only progressive church in my area- the only one openly welcoming to gay or trans, the one that hosts NA and AA etc...etc... the one where I went on a service day to volunteer at the organization that supports homeless teens.. you get the idea. I visit the other because of the people there figuring Oh and weirdly, this church with the pastor happens to have a FEMALE bishop that I saw the one time, and I tell you she had this fab purple highlights over her silver hair, and I was just getting that lesbian vibe... I mean , someone else commented they had same thought- that this pastor who is old school and has not grown just might be oblivious to reality, out of touch and in fact blind to the leadership and direction of his OWN church capital "C" . Sheesh. But regardless, I mean who am I to comment on the sexuality of a bishop... although I think if that inkling were true it would be so very ironic. OK back to the work of day. Will try to get into my email. In other news Will have a co -pay of $1500 but hey not bad as they did say the whole roof needs replacement. I just have a couple hoops to arrange that. Thank God for my job. Exhausted and achy today but myself getting by. I overdid some physical work the Fri before last and am still feeling the pain in joints. Went swimming one morn, then the next did hours of gardening.Lots of up and down bending knees so my back would not hurt. Problem is the knees have been achy for over a week now. For days I felt like I had a very hard long run. It was like I ran an eight miler after not conditioning.... my muscles were so sore! Clearly not in shape I had been in as still gently exercise for most part as the muscle pulled in leg never fully healed. So overdid it and the overall body aches are still there. I am sure they will heal soon enough.
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