2022-11-04 - 7:52 p.m.
Bummer, I turned down a shift at work on Monday to take my kid to the specialist who mangages her primary chronic illness to find out today that the Dr. does not take our insurance.
They had called and talked to my kid who answered all the pre- appointment questions.
I have been driving the young adult into DC for care but am grateful a local doctor was found who is a really good primary physician who is providing good care. That makes life MUCH easier than when had to go back and forth to/from DC.
The last time my kid met with the specialist all was looking good. They are stable and their tests all came back significantly better than prior years. That makes sense as the kid is also functioning WAY better than prior years.
The problem is some of the medications that work have been prescribed by this doctor. So although my kid went to the local doctor for a general healthcare and annual physical, as well as medical maintenance of the medications that the DC doctor originally prescribed it kinda stinks cause will have to go back to the primary local doctor to see if she can prescribe the medical maintenance prescriptions that this specialist prescribed!
Just a bummer.
I think the local doc will be able to continue the meds however without issue.
She also had continued a medication that ANOTHER specialist prescribed ( the sleep specialist).
So maybe good in a way as dropped two specialists, and the general MD picked up the task of reviewing health and prescribing those meds and running bloodwork and testing to see how they are all working. Having been under the care of the specialists for a couple of years with success of their treatment and input of their subject expertise already, it makes sense the general MD could then continue their prescribed treatment.
Its just a bummer as this particular specialist happens to be one of the foremost experts in the world on Dysautonomia/POTs.
This appointment was scheduled a year ago; as my kid was stable and told to just come back in a year for a check up.
Well the kid is OK so not that big of a deal.
I did say we would just hold off in hopes I do land a good full time job with good medical insurance.
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